Thursday, May 31, 2007

As I mentioned recently, I went to a sleep study center a couple weeks ago and stayed overnight, where I learned I have an apnea problem. A couple days ago I returned to the sleep center to spend another night, this time with a CPAP (continuous positive airway pressure) machine and a mask. It was in interesting night.

A little pill helped me fall asleep that night, but throughout the night I woke up from the weirdness of the mask on my face. Sometime in the middle of the night I had a pretty bad "mouth leak," meaning my mouth was opening so the air pressure from the machine and mask over my nose was flowing right out my mouth. So the technician came in and put a chin strap contraption on me, which was a bit too much - I have to say I felt like I was in a head cage or something.

But it did work - Even with the interruptions, I felt noticeably more refreshed than ever the next day as I drove to work and went about my daily work routine. I also had some super-crazy dreams on that first night with a CPAP machine at the sleep center, ones which I actually remembered. And that pretty much never happens to me these days. My doc told me my REM sleep (deep sleep where you dream) was pretty much too broken up to be of any good to me based on the number of apnea episodes I was having, so he was not surprised at the dreams, or the intensity/craziness. He said there's a theory of REM rebound, where a person who has had badly fragmented sleep suddenly is able to enter extended REM sleep, so the brain has a lot of clutter to clean up and the dreams can be intense or active.

I was sent home with a CPAP machine (actually it's a BIPAP machine that has a humidifier - more on that later) and a couple different masks to use. One of them is very small and fits under the nose, and the other one is more of a traditional full-face mask. I tried the nasal pillow model last night with limited success (it made the lower bridge of my nose pretty sore by morning), so tonight I am trying the mask that covers both the nose and mouth in hopes it will provide better results since I am told I am a "mouth breather." It turns out there are a lot of masks out there, with new ones coming out all the time, so it's a matter of trying them til you find the one that works best for you. Most take some getting used to, they say.

At some point here I'll get all geeky and write about the hardware and what it does (the BiPAP machine is computerized and has a smart card like thing that I can pull out and take to the doc so he can see how well I am doing on the machine - pretty cool). I'm lucky to have really good health care insurance that recognizes the preventative value of this stuff and covers the significant majority of the equipment cost

Any CPAP tricks out there that people know of? How long did it take people to adjust, I wonder?



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Thursday, May 31, 2007 11:25:07 PM (Pacific Daylight Time, UTC-07:00)
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cpap machine (www.google.com.tr) [Referral]
cpap tricks (www.google.com) [Referral]
Friday, June 01, 2007 4:43:17 AM (Pacific Daylight Time, UTC-07:00)
It takes time to get used to. If you tell yourself you can't handle then you wont be able to do it.

The first few weeks I would always start out with it on and take it off because I felt like I wasn't able to get comfortable. When I started snoring my wife would nudge me and inform me that I took it off. I would put it back on so that I wasn't keeping her awake. Now that I am used to it going to sleep without it is wierd and uncomfortable. Of the people I know some love the humidifier some hate it. I use it but sicne it is already rather humid in Houston it is on low. Play with the humidifier until it is comfortable. I also have read that some people found that saline gel helped them.

The oposite story is my wifes aunt. She started out saying that she didn't think she could use it and what do you know she couldn't.


Anyway goodluck and good dreaming. If your results are anythig like I felt you'll feel like a new man.
Patrick
Saturday, June 02, 2007 9:29:17 PM (Pacific Daylight Time, UTC-07:00)
Try your best to stick with it, Greg. Patrick is fortunate in that he was able to. Research says that the more severe your OSA, the more compliant you will be. What were your scores? (AHI or RDI, mean saturation %) I also noticed you mentioned being a mouth breather. Most mouth breathers have allergies and nasopharyngeal blockage, so if this sounds like you, have you seen an ENT to see if he can help you become a nasal breather? Or, have you successfully treated your allergies (if you have them)?

Unfortunately, most sleep labs see OSA as a big juicy nail, and use the CPAP (or BiPAP) as their only hammer. They don't even talk to you about the other treatment options, even if you become non-compliant. Believe me, the CPAP is the gold standard, and I hope you stick with it, but if you can't, just know there could be other options for you.

I may not check back here, so you can email me with questions.
Tuesday, June 05, 2007 9:42:58 PM (Pacific Daylight Time, UTC-07:00)
My dad and sister both use the CPAP, and I think it just takes some time to get used to. My dad is near euphoric now that he gets enough sleep, so it's worth it. Plus I can send my five-year-old son to his bedroom to wake him up in the morning. Kind of a cool, Darth Vader moment.
Thursday, June 07, 2007 6:50:56 PM (Pacific Daylight Time, UTC-07:00)
BiPap is nice especially since it has different pressures when you breathe and exhale.. I've used one since 2004 full time and am 100% compliant (I won't even take a nap without it). Just make sure that you go and get checked fairly often as your pressure needs can change over time (especially if you gain or lose weight). I don't have to with mine as it autotitrates (i.e., my pressures change depending on how I breathe and my current level of allergies, but I stay pretty consistent at 11.6).

Get a pretty good supply of vinegar and distilled water. Vinegar will clean your humidifier.

If you have allergy problems, check with your Dr to see if you can use something like Astelin.

Depending on your deductible or insurance company, you may find it considerably cheaper to buy your masks on a cash basis. I use a full face mask and I change the gasket liner every two months or so and keep an old mask around in case I accidentally break it.

When you fly with your CPAP machine, it is helpful to have a letter of medical necessity with you. The CPAP machine does not count against your carryon limit and with the letter, you can insist that it stay on board in case all of the in-plane storage areas are full.

There may also be a time in the near future when you will start to feel tired.. This is normal. Your body will want to make up for something called a "sleep deficit". You will get over it pretty quickly.

That's all I can think about for now...

Oh - one more. UPS's work well with the devices and it also gives me an extra alert in case the power goes off at night.
Jeffrey
Thursday, June 07, 2007 9:44:23 PM (Pacific Daylight Time, UTC-07:00)
Thanks to everyone all for the thoughts and information, it's really very helpful. I've been using the mask most every night, and even brought it with me to Florida this week, where I am attending a conference. I'm getting a little more used to it, but I think I need to work to find a different mask that will work better (not leak, not painful to wear all night, stuff like that).

Keep the ideas and thoughts coming. :)

greg
Tuesday, October 09, 2007 12:35:25 AM (Pacific Daylight Time, UTC-07:00)
Hello..

I was diagnosed as having sleep apnea 12 months ago.
I had 50-67 apneas per hour.
Ând given a Bipap machine to sleep with.

8 months ago I had a overnight test to see how I was progressing with the machine.
Now I have 105 apneas per hour.

The bipap machine settings where left the same,
and I was given RIVOTRIL to stop the leg movents.

THERE IS NO DIFFERENCE AND IM STILL VERY TIRED AND SCARED
AS I AM ONLY 40 YEARS OLD.
AND HAVE TO WAIT ANOTHER 2 MONTHS FOR ANOTHER APPOINTMENT.

(I USE THE BIPAP EVERY NIGHT FOR 12 MONTHS NOW AND NO DIFFERENCE.
SHOULD i NOTICE THE BENEFITS OF WELLNESS BY NOW??

I FEEL LIKE A NUMBER AT THE HOSPITAL,
MY LIFE IS ALMOST NON EXISTANT DUE TO NO ENERGY,
I WAS SO SPORTIEF BEFORE IT WAS MY LIFE.

AND NOW NOTHING.
WHAT CAN I DO?
David
Thursday, November 29, 2007 8:01:22 AM (Pacific Standard Time, UTC-08:00)
i am looking for a ,,,,,, i think a bipap machine ,,,, there was a story above that a person had a machine that automatically changes breathing pressures with your breathing ,,, i have been to a sleep study and they sent me home with a cpap machine ,, it had too much pressure coming out,, it was a force to much for my exhaling ,, so ofcourse i took it back the very next day ,, it was set on 9 ,,, so if there is a machine out there that automaically sets its self please let me know ,, and send me a phone # and i can call you with other questions ,, or you may call me at 419-822-5001 ,,,,,,,

thanks dave
Thursday, November 29, 2007 8:03:27 AM (Pacific Standard Time, UTC-08:00)
i am looking for a ,,,,,, i think a bipap machine ,,,, there was a story above that a person had a machine that automatically changes breathing pressures with your breathing ,,, i have been to a sleep study and they sent me home with a cpap machine ,, it had too much pressure coming out,, it was a force to much for my exhaling ,, so ofcourse i took it back the very next day ,, it was set on 9 ,,, so if there is a machine out there that automaically sets its self please let me know ,, and send me a phone # and i can call you with other questions ,,

thanks dave
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